Thursday, September 19, 2019

Other Duties As Assigned


Three months. A seemingly short span of time and yet, a great deal can change in three months. Jordan had clinic today – often an extended appointment involving a full team of doctors. Today our appointment was surprisingly one of the more abridged experiences we’ve had in our nearly two-year venture into the world of cystic fibrosis partly because we lucked into ideal scheduling at the hospital and partly because we walked in with three small children.

Today, our arrival aligned with our doctor’s completion of another CF patient’s appointment, and the girls’ presence typically invites curious faces into the cramped room that we occupy, expediting our priority on the rotation schedule. I am happy to report that the girls were enthusiastically engaged with everyone we encountered, and Jordan only screamed for the first few minutes of his checkup – much less than we anticipated. We had to laugh denoting how healthy his lungs are if he can cry at such extraordinary decibels. (Keep clearing those airway passages, my son).

Check off “attend a clinic rotation” on the CF list of to-dos for the next quarter of the calendar year. In spite of knowing how well Jordan is doing, I still struggle in the days before it is time for clinic again. As my anxiety heightens before Jordan's appointment, I return to the notion that parenting often requires us to assume roles and duties that we never dreamed of when holding a newborn baby for the first time. Walking alongside a child in this world is full of beautiful discoveries that we share as they experience firsts and reach milestones, but being in this world means that beautiful moments are not devoid of heartbreak and heartache.



In life, we do not willingly sign up for the challenges we face. People do not naturally raise their hands, volunteering to endure painful experiences or to assume more work than they can handle, and yet there are moments when we are called to action whether it be to advocate for the health of a child or to support a much larger group of people.

At school, the byline in my instructional coach position that reads “other duties as assigned” continues to apply to the daily agenda that fills my scratched notebook, a notebook that I repeatedly leave in the rooms and on the desks of my colleagues and friends who I am blessed to work with each day. (Thanks for returning it to me each day, friends). Sometimes the list of to-dos feels insurmountable. 

Every day I ask myself, “Am I doing what’s right for kids? Am I doing what’s right for MY kids?” I have come to realize that this is a question that needs to be revisited each day. While my natural instinct is to be planned both at school and in life for the next three months straight, I continue to remember that what we do each day is far more important than where we anticipate we will be in the coming weeks or months. Plans are valuable and essential to our success, but plans should not be written in permanent ink. Plans can and sometimes have to change. Today matters and should be the priority. Instead of wishing or waiting for the holidays to come or the next chapter in life to begin, we should appreciate the here and now. The people and the experiences before us today deserve our attention and love because in that instance, and for that time, we have an opportunity to make the present moment meaningful.



Life is full of unexpected gifts and obstacles that can be used to generate positivity and perpetuate good in this world. I will continue to embrace those experiences. Whether it be an unresolvable tech issue or a daily treatment for my tiniest little guy, I will continue to seek and find meaning.

Thank you, Jordan, for teaching us all to tackle the “other duties” that have been assigned to Team Sukow this week and in this life. Life will continue to ask us to face moments of joy and moments of adversity, but again, I return to the idea that we no matter what we face, Team Sukow will face them together with great fervor and positivity. Everything does not happen for a reason, but we will make reason and meaning together.


3 comments:

  1. You and your family continue to inspire and amaze me! ❤️

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    1. It's because of our village that we are able to be positive and try to show love to the people we meet each day. You are a huge part of that village, and we love you!

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  2. Wonderful reminder for us all! Thank you for sharing your story, we love you all!❤

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